Prayers for Noah
Over four years ago I adopted a baby boy with Down syndrome. He came to be known as Noah because I knew it would require great faith to take care of him. Noah has iris and retina coloboma which means in the womb his right eye didn't develop properly. He has two holes in his one eye, and he was born with two holes in his heart. We were told those holes would close up on their own, but last summer it all changed. Noah had two devices placed in his little heart to help close off the holes. His heart was becoming enlarged on one side.
This coming Friday Noah will head back to have his heart checked out. For six months he was on baby aspirin, and we are praying that the tissue is growing over the devices to close off the holes. I will not be available to take phone calls on Friday morning (EST). Take some time today and say a little prayer for Noah.
Noah has been a constant reminder to live each day to it's fullest. Though he has his challenges to face, he is an inspiration to all of us. He judges noone, and he loves with all of his heart. Our goal is to one day take him to Disney World. However, for today I pray he can remain calm so this isn't just one more traumatic experience for him. Last week I took him to a eye specialist where it took three of us to hold him to place drops in his eyes and then check his eyes.
Normally he is a singing and happy go lucky little guy. Yet due to the traumatic experience of having his heart repaired, every appointment is difficult for Noah. Imagine yourself being three years old and being told to lie still with an IV and stick taped to your arm, and a sock over your hand to prevent you from pulling out the IV. Then every time you wake up a little a nurse comes in to give you more drugs to keep you sleepy for 6 hours. You spend the entire day in a bed when normally you are bouncing around and playing. You fight to get up, but even your parents hold you down knowing moving could be more devastating. You don't understand because you are three years old. All you want is to leave and get out of bed, but your legs won't move. Even the next day when they send you home, you fall to the floor like a little rag doll. Your parents take you back to the ER the next day knowing you should be able to walk. You plead to go home. The final conclusion is you have just had so much drugs that it may take you longer than normal to walk again. Those two days are with you so seeing any doctor is traumatic.
Say a prayer for Noah so that he may understand his heart needs to be checked, and noone is going to hurt him. Pray for his complete healing.
Thank you!
Miss Serenity Star
1-800-ask-keen ext 023988